New Year Musings and Milestones Worth Celebrating

Let’s face it on a global scale 2017 wasn’t the greatest was it.

Unless you’re a fan of orange-hued ego-maniacs with a bigger love of irrational and grammatically incorrect social media usage (‘Covfefe’ anyone?) than the importance of international diplomacy and the uncomfortable truth that sexism and sexual harassment against women is still a horrific reality in far too many workplaces.

On a personal level many people I know have faced difficult hurdles this year, including bereavement, anxiety attacks, bureaucratic battles that weren’t so much uphill as vertical, serious health worries (both mental and physical) and struggles to cope with difficult news and change.

We’ve had our fair share to deal with as well in the Neat Freak household, and my OH and I have commented infrequently that 2017 has probably been the toughest year of our lives so far – but it’s also been the most rewarding in many ways.

After the initial shock of the A Word diagnosis, now some 18 months ago, we’ve all grown as a family and learned much about what this lifelong condition is, how it’s somehow curiously the same and ever-changing as well as being ever-present, and how it can bring as many joys as it does difficulties.

A lot of what we thought we knew about the future has altered and we’ve had to learn to accept (sometimes grudgingly) that when autism affects a member of your immediate family it’s easier to take things a day at a time and not look too far ahead, even if occasionally that really hurts.

As a mum I’ve always hoped that my children will be able to pursue their chosen path in life, with many doors and possibilities open to them, but with Blue-eyed boy I’ve had to accept that his autism may mean some things are more difficult for him.

As someone who was bullied at school I fiercely vowed a long time ago that no one would ever pick on my kids, but I’ve had to swallow the fact that Blue-eyed boy will probably be an ‘easy target’ for unkind people who prey on the little quirks and differences that others fortunately celebrate. I’ve had to learn to grow a thicker skin.

And hardest of all, we’ve had to come to terms with the fact that Blue-eyed boy may never be able to attend mainstream school and that, even though this was the right  option for us and Mini-me, the best one for him involves a place at the local special school – at least for the next couple of years.

But what we’ve also learned is how the A Word shakes up your view of the world around you in glorious kaleidoscope technicolour, and how things you once took for granted or viewed as ‘little’ can suddenly be the ones that light up your day.

Things such as your child using new words and stringing several of them together, doing a simple jigsaw puzzle by themselves and beaming with pride when you praise them, dividing numbers into odds and evens leading you to wonder if one day they’ll be a ‘maths genius’ and watching your two kids play brilliantly together because as well as being a fan of Barbie’s Dream House the eldest sibling is also a carer at the age of just six and kind and accepting beyond her years.

2017 was a year of many firsts – a new specialist pre-school, many new friends, new understandings and knowledge and a dawning realisation that we’ll never stop having to battle the local council and fight for our child.

2018 will no doubt bring many new challenges, highs and lows for us and others close to us. But with the support of our family and good friends hopefully we’ll all come out smiling the other end.

And if all else fails Trump may get impeached. Fingers crossed on that one.

 

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